The Lupus Diaries




(Source: spooniestrong)


14 notes ∞ Reblog 15 hours ago
thepillowfortuk:

The Pillow Fort - making chronic illness suck less

thepillowfortuk:

The Pillow Fort - making chronic illness suck less


191 notes ∞ Reblog 4 days ago

"

One of the hardest things about chronic illness is the waiting. Waiting for the medication to kick in. Waiting for the prescriptions to be filled. Waiting for paperwork to clear. Waiting for the next doctor’s appointment. Waiting to please just get better already or to finally keel over dead.

Over the years I’ve gotten used to the pain, but the waiting never gets easier.

"

-(via the-girl-with-the-purple-cane)
763 notes ∞ Reblog 6 days ago

(Source: desenharts)


3,183 notes ∞ Reblog 1 week ago

Wednesday, April 9

Okay, that was fast.  I was perfectly healthy on Tuesday morning (or at least, as healthy as a person with lupus can be) and then suddenly, BAM, I came down with something.  I still don’t quite know what it is, but I do know that I feel like shit.  I’m almost positive I had a fever yesterday, but I don’t have a thermometer in the dorm.  I had chills and some soreness that is probably mostly from the intense exercise that I had done earlier in the day and the previous day.  Today I woke up feeling worse than yesterday.  The muscle soreness was unbearable.  I could barely walk, much less make it up the stairs without wincing.  My calves are still crying, as well as my upper back and abdomen.  I’ve taken all the naproxen I can, but it really doesn’t feel like it’s doing anything.  Hopefully it gets better soon!  I can’t afford to get behind in my classes!


Putting Lupus in Permanent Remission

huntingthewolf:

Exciting news! Northwestern Medicine Scientists have successfully tested a nontoxic therapy that suppresses Lupus in blood samples of people with the autoimmune disease.

"The peptides have the potential to work like a vaccine in the human body, to boost the regulatory immune system of those with Lupus, fight autoimmune antibodies and keep the disease in remission,” said Syamal Datta, M.D., senior author of the study.


4 notes ∞ Reblog 2 weeks ago

(Source: hushedcrying)


3,202 notes ∞ Reblog 3 weeks ago

Do you ever get so jealous of healthy people?

dagdasgirl:

Like you see people being able to go out anytime they want and take showers whenever they want and you’re just like “How dare you feel okay in my presence.” and just thinking about it makes you so mad because you know there’s a big chance you’ll never ever get to enjoy a normal healthy life. Like I’m torn between “Okay I got this” and “Woe is me”. More like I feel both of that at the same time? Like I’m probably the only person who feels like this okay.


64 notes ∞ Reblog 3 weeks ago
brintty:

1000drawings:

Winter by Julia Cejas 

That spoonie life.

brintty:

1000drawings:

Winter by Julia Cejas

That spoonie life.


2,841 notes ∞ Reblog 3 weeks ago

deliciousdannydevito:

shoutout to young adults with debilitating conditions who feel like their lives are stagnant or regressing, while everyone else moves forward

we’re gonna be ok

(Source: primadollly)


17,660 notes ∞ Reblog 4 weeks ago
thatmouseyblog:

anatomicalart:

digitalarcadia:

thegreenpaperclip:

maryaniloo:

kimmcheee:

ATTENTION ALL GIRLS: We ALL know that the lower stomach is one of the very hardest places to burn fat and tone.
These are some terrific exercises to do in the morning and at night to burn those hard to tone areas!
Do this every morning when you wake up, and every night before you sleep. I guarantee you’ll see results in a week flat!

Liking and reblogging for future reference!

Oh man, my old soccer coach used to make us do the top left one

Used to do these in ballet class.

Great way for us art vampires to stay in shape!Or if you just want reference for drawing characters exercising. 

these are pretty good for anyone to do really 8D

thatmouseyblog:

anatomicalart:

digitalarcadia:

thegreenpaperclip:

maryaniloo:

kimmcheee:

ATTENTION ALL GIRLS: We ALL know that the lower stomach is one of the very hardest places to burn fat and tone.

These are some terrific exercises to do in the morning and at night to burn those hard to tone areas!

Do this every morning when you wake up, and every night before you sleep. I guarantee you’ll see results in a week flat!

Liking and reblogging for future reference!

Oh man, my old soccer coach used to make us do the top left one

Used to do these in ballet class.

Great way for us art vampires to stay in shape!
Or if you just want reference for drawing characters exercising. 

these are pretty good for anyone to do really 8D

(Source: soon2befit)


264,574 notes ∞ Reblog 1 month ago

phdix:

how cool would it be to wake up one day and not feel like shit

(Source: whackdonalds)


7,667 notes ∞ Reblog 1 month ago

(Source: littleharleythings)


65,660 notes ∞ Reblog 1 month ago

"Chronic pain is one of the most underestimated healthcare problems in the world today. We believe chronic pain is a disease in it’s own right."

-Professor Harald Breivik - WHO (via thefaultinourspoons)
462 notes ∞ Reblog 1 month ago
thecvsgirl:

annoyednurse:

Holy god! Do you know how much easier an IV start would be?! This is VeinViewer and it projects an image of the veins that are underneath the skin. Genius idea!

this would make a lot of spoonies lives easier too I’m sure!

thecvsgirl:

annoyednurse:

Holy god! Do you know how much easier an IV start would be?! This is VeinViewer and it projects an image of the veins that are underneath the skin. Genius idea!

this would make a lot of spoonies lives easier too I’m sure!


1,501 notes ∞ Reblog 1 month ago
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