The Lupus Diaries


Visit for more information on how to help us on our quest for a cure. 


Visit for more information on how to help us on our quest for a cure. 

3 notes ∞ Reblog 2 weeks ago

"There is strong, and then there is chronic illness strong"

-(via insicknessinhealth)
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Anonymous said: how long you have been diagnosed with lupus? Has it not gotten into remission?

I was diagnosed almost two and half years ago.  I’ve also been in remission for a long time, which makes me feel very lucky.  Hopefully it can stay this way!  


Ian Harding talks about his special bound with the Lupus foundation (x)

268 notes ∞ Reblog 1 month ago

Anonymous said: Hello. Today my doctor said I might have lupus and tomorrow I'll go see a rheumatologist. I'm scared ... like this morning I was planning a trip w/ my friends and now I might not even be able to walk in the sun again. I'm only 16 and this is so scary

Hello, dear.  Sorry I haven’t gotten to this until now.  I’ve been in Europe for the past two weeks.  

I was your age when I was diagnosed. :)  Don’t freak out! Having lupus doesn’t mean the sun can never touch your skin.  You just have to be a bit more cautious than normal people.  Wear sunscreen and stay in the shade whenever possible.  The sun probably will make you tired if you’re in it for a long time.  

Lupus may seem like the end of your life, but it is only in fact the end of life as you know it now.  It seems like you are being diagnosed early, which is important.  You could potentially lead a very normal life like I have, with a just a few roadblocks.  I have medication that I have to take daily and I have many more visits to various doctors and I’ve certainly noticed that I’m more susceptible to illnesses.  Sometimes my fatigue kicks in at inconvenient times.  I’m jealous of healthy college kids who can drink as much as their hearts desire, even though I consume way more alcohol than I’m supposed to.  Other than that, I function like every other nineteen-year-old.  As for your travel, I just came back from a ten day trip in Europe.  I’m sure whatever you’re planning will be just fine.

Thanks for the question. :) If you ever need anyone to talk to, I’m always here.  You don’t have to be alone with this disease.  I know exactly how you feel.

"My illness is not classified as terminal. But many days I cannot deny it has taken my life away."

-(via chronicallyalive)
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"Well I don’t understand your medical condition, and have never bothered to research it, but I’m sure it’s just mind over matter and you’re just lazy."

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Source: How the brain responds to pain.

Follow Francesca Mura on Pinterest

2,662 notes ∞ Reblog 1 month ago

"My own body feels more like a guillotine than a gift."

-Ollie Renee Schminkey, Boobs (via a-thousand-words)
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Apparently how people feel after waking up from naps.


How I feel after waking up from naps.


(Source: copernicus-qwark)

278,983 notes ∞ Reblog 2 months ago

AmazonSmile: You shop. Amazon gives.


Support the ALR while you shop at AmazonSmile! Select the Alliance for Lupus Research as your charity of choice at AmazonSmile and Amazon will donate a portion of your purchase price to benefit lupus research. Click above to learn more and sign up!

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