The Lupus Diaries




"So I guess because it’s invisible, either way you lose, right? Because if you don’t talk about it, no one even knows you’re suffering, you’re just expected to deal, and if you do, you’re labelled as attention seeking and overdramatic?"

-my dad said this last night and i nearly cried because!!! he gets it!!!  (via gracesoglorious)
1,350 notes ∞ Reblog 2 months ago

(Source: groundedonthedaily)


27,499 notes ∞ Reblog 2 months ago

Listening to someone with no medical experience give you advice

ehlersdanloszebra:

image


471 notes ∞ Reblog 2 months ago
ahealthblog:

Another Good Carbs vs. Bad Carbs Infographic

ahealthblog:

Another Good Carbs vs. Bad Carbs Infographic


30 notes ∞ Reblog 2 months ago

theprincesspatient:

eclecticchaos:

littlecatlady:

disgustinghuman:

someone wrote a post about forgetting to take their medication which reminded me to take mine
whenever I mention medication people end up commenting saying ive reminded them

so this is a friendly reminder for us to take our medications

thank you

^knew I had forgot something

Taking care of each other, one spoonie at a time.


56,559 notes ∞ Reblog 2 months ago

Having a chronic illness in the American healthcare system…

whatshouldwecallchronicillness:

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177 notes ∞ Reblog 2 months ago
kxffy:

rynvasnormandy:

GUYS YOU HAVE NO IDEA HOW WONDERFUL THIS IS 
Parkinson’s is a degenerative disease and while it’s progress can be slowed down, it currently doesn’t have a cure. People suffering from Parkinson’s will experience a gradual loss of coordination and ability to perform even the most basic of every day tasks, including feeding themselves. 
This fucking spoon is HUGEfor them. Look at that gif of the man just trying to eat with the regular spoon and compare it to the liftware device. It’s NOT just a spoon, by the way, it comes with a fork as well, for example. 
I found the website for the project where you can purchase a spoon for someone you know/love and even possibly donate money to help someone out who can’t afford it themselves right: HERE.
At the very least, please spread this for all the people who have Parkinson’s or loved ones with Parkinson’s. 
You’ll help them take part of their life back. 

ahhhh this is so ace!!!

kxffy:

rynvasnormandy:

GUYS YOU HAVE NO IDEA HOW WONDERFUL THIS IS 

Parkinson’s is a degenerative disease and while it’s progress can be slowed down, it currently doesn’t have a cure. People suffering from Parkinson’s will experience a gradual loss of coordination and ability to perform even the most basic of every day tasks, including feeding themselves. 

This fucking spoon is HUGEfor them. Look at that gif of the man just trying to eat with the regular spoon and compare it to the liftware device. It’s NOT just a spoon, by the way, it comes with a fork as well, for example. 

I found the website for the project where you can purchase a spoon for someone you know/love and even possibly donate money to help someone out who can’t afford it themselves right: HERE.

At the very least, please spread this for all the people who have Parkinson’s or loved ones with Parkinson’s. 

You’ll help them take part of their life back. 

ahhhh this is so ace!!!


415,757 notes ∞ Reblog 3 months ago

perksofbeingaspoonie:

When I forget to take really important meds.

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16 notes ∞ Reblog 3 months ago

thewallflowerchronicals:

ei666shii:

How everyone else’s body works:

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How my body works:

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I’ve never seen a more accurate representation.


246 notes ∞ Reblog 3 months ago
illness-to-wellness:

Heck yes, progress! I appreciate their acknowledgement of invisible illnesses here!

illness-to-wellness:

Heck yes, progress! I appreciate their acknowledgement of invisible illnesses here!

(Source: sammijawsome)


1,014 notes ∞ Reblog 3 months ago

all-the-other-urls-are-taken:

Okay, so people of tumblr who have chronic/invisible illnesses - do you ever get scared you’re making it up? Like, logically I know I have CFS/ME, and I know I’m not making it up because y’know, what would be the point in that? But I keep finding myself thinking “but what if I AM making it up? What if it is all in my head and I’m just a lazy shit?” and it makes me feel kinda crappy. So do you guys get it too or is it just me?


124 notes ∞ Reblog 3 months ago
arthritishumor:

 Reading the side effects of methotrexate. 

arthritishumor:

Reading the side effects of methotrexate. 


35 notes ∞ Reblog 3 months ago

"Chronic pain sufferers are not addicted to pain killers. Chronic pain sufferers are addicted to not having to be aware of every inch of their body for every waking moment. Chronic pain sufferers are addicted to the freedom of nothingness, and don’t you dare judge them for wanting something you get free of charge."

-(via ifyouveeverbeeninlove)
3,029 notes ∞ Reblog 3 months ago

Awful

Guess what? It’s 2 am and I’n still up. Ever since I woke up from my nap at 9pm, I’ve had a headache and nausea. This blizzard also means I can’t go out, so that’s not helping either.



777 notes ∞ Reblog 3 months ago
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