#Lupus #SLE #LifeWithLupus #Lupie #LupusAwareness #LupusSupport #LupusTruth #raynauds #raynaudsphenomenon
"Being sick begins a war that requires determination and skill. It is a war with pain, with fatigue, with doctors and insurance companies, with all who do not believe such a well-looking person can possibly be ill. It is also a war with the self.
There is an assumption of choice – that with enough effort this illness can be made to go away. But at some point the body is weary and a decision must be made. Continue the fight or surrender. It takes a very long time to make peace with the truth that the illness, this particular illness, is not going to go away. Not anytime soon. Not with the treatment available now.
It takes a very, very long time to accept the irony that winning the war requires embracing the enemy. With the embrace comes a real choice: the choice to fight not against the illness, but for the self. The choice to build a life with meaning – even if that life contains illness.
Once this peace is made the war ends and reconstruction can begin."
Joy Selak & Stephen Overman, You don’t look sick! (via au-nte)
I run a chronic illness support group and after seeing the movie poster for a book that hit very close to home for us all, the tag line “one sick love story” was very off putting. We had a discussion about what we felt was wrong with it, out of pure love for the story and John Green of course, but this is what I came up with. It’s an important message to the not chronically ill nerdfighter community. It’s an important message to let other chronically ill nerdfighters that they are not alone. It’s an important message that we are all together in this literal heart and this book belongs to it’s readers. This is not one sick love story, this is a life story, it’s so much more.
Thank you for reading this. I send the whole internet my sincerest of love and hugs!
it’s funny how providing accommodations to a disabled student is “unfair to the rest of the class” yet imposing a standard on a disabled student that is based on the capabilities of able-bodied students is fair and impartial, isn’t it funny how that works?
Have Yourself a Merry Little Christmas (by ASCAP)
I just want to give a shout out to all the medical staff that have to work during the holidays. Thank you for what you do and for caring and comforting those who are ill or hurt during the holidays. Thank you for spending your Christmas by their side and doing your best to keep them healthy.
college is catered towards the able bodied and able minded. school applauds people who can stay up all night, skip meals, and work endlessly. that kind of extreme contribution is expected. why are disabled people being squeezed out of academic institutions? why should I feel inferior because of some arbitrary and ridiculous standard?
This is how a feel when in the middle of a flare up, that I only have one spoon and it’s broken.
"I’m not too young for this disease but I’m too young to medicate it?"-heyatlaestitsnotcancer (via noeforme)
People who have never dealt with chronic illness or chronic pain will never, ever be able to understand what its like until they have to deal with it themselves.
If you do have either, you are persecuted because it is not visible on the outside, therefore it cannot exist and you must be faking it/lying/making excuses/lazy